The US CDC is removing all questions about ME/CFS and Long COVID from their health survey. Submit a comment by Oct 20 to urge them to keep tracking the chronic illnesses. They stopped tracking infections, and now they're not going to track disability either.

Submit a comment here: [https://www.regulations.gov/document/CDC-2026-1387-0001](https://www.regulations.gov/document/CDC-2026-1387-0001)

It's just a single text box, nothing super involved.

Tips on what to write if you are feeling formal or want guidance: [https://solvecfs.org/cdc-me-cfs-long-covid-survey/](https://solvecfs.org/cdc-me-cfs-long-covid-survey/)

More information here: [https://www.reddit.com/r/cfs/s/DDgdAMJYNW](https://www.reddit.com/r/cfs/s/DDgdAMJYNW) (Don't know why mods haven't allowed crossposting from there.)

If you want to look at the draft survey: https://www.cdc.gov/nchs/nhis/about/2028-questionnaire-redesign.html