Ambulatory Wheelchair Advice
I am 30/f and getting a custom rigid chair in a few weeks. I have had ankylosing spondylitis for over 10 years - which is now merging with some type of psoriatic arthritis in my toes so peripheral symptoms. I am also hypermobile with very weird fascia probably related. I asked for a wheelchair prescription over 4 years ago and had one and a spine pm&r dr sort of gave me a talking to and scared me granted he wasn’t even treating me for as but for a stenosis flare up and annular tear which are doing amazing now as I have gotten stronger. I have a host of back issue maybe genetic maybe from AS ddd, stenosis, pelvic pain but don’t tend to have very many back issues now unless the as flares. I am a pt who does it all the medications , the holistics, always in pt, added in ot, always working to get stronger and manage symptoms I am relentless in the treatment of my conditions. I bother my specialists and always find solutions to my flares or pain. But my conditions are also relentless the inflammatory arthrisits has been a nightmare if it’s not that it’s the hypermobility it’s constant but here I am still trying to do it all myofascial release, accupuncture, all my rheum meds, integrative health, working out, warm water pool. I still work full time and love my current job and I’m even up for a promotions I also am a part time grad student but I finally realized as the flares have gotten more frequent I am totally drained after my work day, taking care of my health, and working on school. I have no social life cause I can’t be on my feet super long for longer events, I really would like to date, I don’t think these condition will permanently disable me but I think having a ambulatory wheelchair available to me would make me feel less stressed about having that happen so I finally asked the doctors for another script and went and had a great experience at the wheelchair clinic and my wheelchair was quickly approved. I was honestly so surprised at how simple it was and how kind they were and did not make me feel weird, but I also feel like at the same time. I still feel weird. I’m just looking for some advice that having an ambulatory wheelchair can help me feel some normalcy in my life and not have my life revolve around just my illness. I think that is what my goal is with it and I just would love some encouragement.